Annual Report 2018


To fill the gap in patient reported picture on quality of life in severe atopic eczema in Europe, in 2017 EFA interviewed 1189 patients from 9 countries on their  Quality of Life (QoL) and economic impact on their severe atopic eczema. Though this survey, also a genuine Patient Reported Outcome Measurement (PROM) tool was born: Atopic Eczema Score of Emotional Consequences (AESEC©).


The report ‘Itching for Life: Quality of Life and costs for people living with severe atopic eczema in Europe’ brings life this data, the true impact of severe atopic eczema and it was launched during the first ever European and Global atopic eczema day.


The biggest-ever Quality of Life report on atopic eczema in Europe

1 scientifically validated questionnaire, translated in 8 languages and approved by 9 national ethical committees

1,189 severe atopic eczema patients interviewed from 9 countries: Czech Republic, Denmark, France, Germany, Italy, Netherlands, Spain, Sweden, and the UK

1 ground-breaking report developed with EFA Members with the Atopic Eczema Working Group, and translated in 9 languages

The report was officially launched during EADV Congress and followed by 261 people physically and online.

Event launch recording available online:

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