Organisation

The European Federation of Allergy and Airways Diseases Patients’ Associations (EFA) is an independent non-profit organisation with its central office located in Brussels, Belgium. EFA connects 39 allergy, asthma and chronic obstructive pulmonary disease (COPD) patients’ associations in 24 countries.

The highest governing body of EFA is its General Assembly, composed of Members, who elect EFA Board and validate plans and reports. The EFA Board steers these plans and reports on behalf of the membership, supported by the EFA Secretariat who facilitates and organises EFA activities.

All EFA governance documents are made public. EFA publishes an annual Activity Report, including financial information. EFA has a Code of Ethics and Conduct, as well as internal rules for its functioning and founding statutes. EFA is registered as an NGO in Sweden (no. 802402-4526) and employer in Belgium (BE0851183611).

EFA Board is composed of a President, a Vice-President, a Secretary to the Board, a Treasurer, and Board Members. All of them are patient leaders and patient representatives arising from EFA Members. They are elected for a two years mandate and can be re-elected for a maximum on two full additional mandates.

 

Mikaela OdemyrPresident

Mikaela OdemyrPresident

I am the 2nd Vice-President of the Swedish Asthma and Allergy Foundation. I work for a non-profit organization in Örnsköldsvik, Sweden. All my children have asthma and allergies, so over the years, I gained a lot of personal experience. I want people with asthma and allergy to experience a good life, good care, and being included in the community.

+32 2 227 27 12
This email address is being protected from spambots. You need JavaScript enabled to view it.

Erna BotjesVice-President

Erna BotjesVice-President

As President of the Dutch Food Allergy Foundation, I am involved in European and national projects dealing with research and improvement in the fields of allergy and patient education. Professionally, I have broad working experience in the public health sector. EFA has inspired and strengthened our organisation; it is a powerful EU-level umbrella for patient organisations.

+32 2 227 27 12
This email address is being protected from spambots. You need JavaScript enabled to view it.

Carla JonesSecretary of the Board

Carla JonesSecretary of the Board

I am the Allergy UK Chief Executive, responsible for the strategic development of the charity. Since 2017, I have been an EFA Board member with the responsibility of supporting EFA with advice on development of strategy. This includes representation at the Global Asthma and Allergy Patient Platform and being the Board liaison on indoor air-quality.

+32 2 227 27 12
This email address is being protected from spambots. You need JavaScript enabled to view it.

Marcia Podesta

Marcia Podesta

I am the President of Food Allergy Italia, an association founded in 2002 focusing specifically on food allergies. I have taken part in several (inter)national studies on quality of life with food allergies. Being a lawyer, I also perform trainings for doctors, nurses and food business operators on issues related to legislation on food labelling. I am EFA board member since 2019.

+32 2 227 27 12
This email address is being protected from spambots. You need JavaScript enabled to view it.

Susanna PalkonenDirector

Susanna PalkonenDirector

For over 15 years, I have worked in the allergy, asthma and COPD patient movement. Being a patient myself, I am passionate about patients’ involvement in health, environment and research policy. I am a member of many initiatives, including a board member of EPF, and have co-authored several papers with our scientific partners in the field of allergy, asthma and COPD.

+32 2 227 27 21
This email address is being protected from spambots. You need JavaScript enabled to view it.

Isabel ProanoDirector of Policy and Communications

Isabel ProanoDirector of Policy and Communications

I lead EFA policy and communications strategy. I have been working in communication and advocacy since 2007, having experience in the private, public and non-profit sector. At EFA, I work to change the perceptions about allergy, asthma and COPD through the development of information, campaigns and tools that will empower people living with these diseases.

+32 2 227 27 12
This email address is being protected from spambots. You need JavaScript enabled to view it.

Antje-Henriette Fink-WagnerDirector of Corporate Relations

Antje-Henriette Fink-WagnerDirector of Corporate Relations

For 21 years I worked for pharmaceutical companies, most of the time for global respiratory franchise respiratory/ medical affairs departments. After finalizing my diploma as nutritionist, I worked for the international Red Cross during the civil war in Uganda. I believe that patients need to understand and control their own chronic disease in a rational way to live their own best possible lives. I want to support chronic patients to become a relevant voice in the concert of stakeholders.

 

Panagiotis ChaslaridisPolicy Advisor

Panagiotis ChaslaridisPolicy Advisor

I contribute to the development of advocacy and communications initiatives vis-á-vis the institutions and other stakeholders in the context of specific policy dossiers. EFA’s mission is fully aligned with my beliefs on the most pressing problems patients face in our days, such as participation in policymaking, the right to quality care, and the need for a healthier environment.

+32 2 227 27 20
This email address is being protected from spambots. You need JavaScript enabled to view it.

Valeria RamiconiProgramme Manager

Valeria RamiconiProgramme Manager

I am in charge of the management and implementation of EFAs projects, including the EU funded ones. I have 10 years of experience in the field of public health and international development, both in NGOs and for-profit companies. My commitment is to ensure that the patients’ perspective is always at the centre of all EFA’s projects and that patients continue being the driver of EFA’s activities.

+32 2 227 27 34
This email address is being protected from spambots. You need JavaScript enabled to view it.

Sofia RomagosaProjects and Engagement Officer

Sofia RomagosaProjects and Engagement Officer

I implement activities related to EU-funded research projects and collaborate on the implementation of EFA’s projects. I also ensure the involvement of EFA Members in EFA's projects. I believe in healthcare as a human right. EFA has a key role to improve disease prevention, healthcare quality, and access by representing the patients’ voice in policymaking processes and scientific research.

+32 2 227 27 34
This email address is being protected from spambots. You need JavaScript enabled to view it.

Eleanor MorrisseyCommunications and Policy Officer

Eleanor MorrisseyCommunications and Policy Officer

I support EFA’s communications activities as well as in its policy work. I am passionate about social rights, and health is central to this. At EFA, this means supporting people with chronic diseases through campaigns and tools, to empower patients in their daily lives and in advocating for their health rights.

+3222271106
This email address is being protected from spambots. You need JavaScript enabled to view it.

Patient and patients representatives’ direct feedback is crucial to help stimulate policy discussions and inspire new approaches to resolve most of the problems confronting them on a daily basis.

At present, EFA gathers 39 national patient associations representing 24 European countries and over allergy, asthma and COPD patients living in Europe.

EFA is looking for a Policy Officer to join our team. Apply here by 17 February.

Interested in becoming an EFA partner? Support us!

Dear Visitor,

for regularly updated information on Covid-19 for allergy and respiratory patients, please consult our Covid-19 resource and information hub.
Stay safe!
The EFA Team