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EFA continues to be the only patient organisation working with European Chemicals Agency
The European Chemicals Agency (ECHA) organised its annual Accredited Stakeholder Workshop on 21 March 2019 in Brussels to mainly discuss ECHA’s Strategic Plan 2019-2023 with official stakeholders, lik ...

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New IMI Project: 3TR
Despite the wide availability of treatments for autoimmune, inflammatory and allergic diseases, the response to therapy and the disease progression is unpredictable and varies from patient to patient. ...

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New COPD development prediction: the ALEC Project
Although COPD has long been viewed as a predominantly smoking-related disease, there is increasing awareness that lifestyle and the environment contribute to the development of the disease already fro ...

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Our takeaways from the ERS Satellite on COPD
FA took part in the last Satellite Precision Medicine training, organised by the European Respiratory Society (ERS) to deliver free cutting-edge education using live-streaming technology. This one day ...

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Asthma UK: Stop unfair asthma prescription charges
EFA Member Asthma UK has launched a petition to stop unfair asthma prescription charges. By now, some 55,000 people have already signed and supported the initiative! Click here if you want to suppor ...

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European Commission Manual for patients: Patients’ rights to accessing healthcare
The European Commission Directorate General for Health and Food Safety (DG SANTE) has published a manual for patients regarding their rights to access healthcare in any EU/EEA country different from t ...

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Rare diseases: A new platform to support better diagnosis and treatment
In light of the Rare Disease Day in February, the European Commission has launched a new online knowledge-sharing platform to support better diagnosis and treatment for more than 30 million Europeans  ...

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Asthma Allergy Denmark: Hay-fever and allergy high-school 2019
EFA Member Astma Allergi Denmark organises a Hay-fever and Allergy High School. During the event, attendees can ask questions and get advice from Astma-Allergy Denmark. The goal of the ‘High School’ i ...

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European Food Safety Authority discusses civil society concerns
The use and presence of pesticides, and their classification as endocrine disruptors where among the top food-related health concerns that civil society representatives discussed with European Safety  ...

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EFA calls for a European Air Quality strategy at the European Health Parliament
EFA was invited to bring the perspective of allergy and airways diseases patients to a debate on environment and human health at the 3rd Plenary of the European Health Parliament, an advocacy forum co ...

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EU digital prescriptions system kicks off in Finland and Estonia
We welcome the initiative giving patients the possibility to use digital prescriptions: prescriptions issued by a doctor at home can be issued when going to a pharmacist in another EU member state.  ...

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Exposure to 25 carcinogens and mutagens will be reduced in the workplace
The third round of amendments on the Directive on Carcinogens and Mutagens at Work came to a close late January. The legislation seeks to impose obligatory occupational exposure limit values on danger ...

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European Medicines Agency reloactes to Amsterdam in March
The European Medicines Agency relocates to Amsterdam. The process will be completed by mid-March 2019. According to an EMA press release, the Dutch authorities have already handed over the temporary s ...

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Environmental agency calls for action to protect Europeans from air pollution and noise
Better alignment of social and environment policies and improved local action is necessary to tackle environmental justice issues. These are the results of a report issued by the European Environment  ...

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COP24 reports how much climate change and fossil fuels harm our respiratory health
The World Health Organisation (WHO) COP24 special report on health and climate change shows that climate change undermines people’s access to clean air, safe drinking-water, sufficient food and secure ...

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New EFA publication: the impact of Atopic Eczema on daily life
Atopic eczema is one of the most common non-communicable inflammatory diseases. Still, its impact on patients’ lives is often underestimated and ignored. In 2018, we studied the impact severe atopic e ...

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Quaterly Summary from EFA Working Groups
In December 2018 and January 2019 we organised follow-up calls with EFA Working Groups to discuss hot topics and share national experiences important for allergy and airways diseases patients. Food  ...

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Asthma Society of Ireland launches social media campaigns on asthma and winter
EFA Member the Asthma Society Ireland has had a quite busy start into 2019. In January, they were running two campaigns simultaneously, Operation Asthma and Winter Wellness. Operation Asthma aims to ...

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EFA trains allergy and airways diseases patient leaders at Meet and Greet the EU
The upcoming EU elections provide great opportunities to strengthen the voice of people living with allergies and airways diseases across Europe. Hence, this years’ EFA Meet & Greet training on Ja ...

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Many obstacles remain to the involvement of patients in the ongoing EU HTA environment
On January 16th, EFA attended the annual meeting of the Health Technology Assessment Network Stakeholder Pool, hosted by the European Commission. During the meeting, participants discussed about how t ...

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