Chronic disease alliance calls for EU’s attention and money on health
On May 16th EFA Isabel Proaño participated in the official launch of the European Chronic Disease Alliance manifesto, called “Europe’s health deserves...
Good diagnosis Or How to live well with severe asthma
The National Conference of the Romanian Society of Clinical Allergology and Immunology took place in Sinaia between the 17th and the 19th of May. As...
MyAirCoach presented at HIMSS Europe and Health 2.0 conference
Technology nowadays allows patients to be surrounded with actionable data and knowledge. Sensors and trackers represent the core of the latest innovations...
Check the air quality in your city! WHO publishes the biggest ambient air pollution database
This May 2018, the World Health Organisation has updated the ambient air quality database, which now covers 4,300 cities in 108 countries. These data are...
Do you know how community care can improve patients' access to care?
This 25th May, we took part in a workshop organized by MedTech and the European Patients Forum (EPF) to explore how community care can ensure equal and...
Medical Technology and Health Workshop EPF-MedTech on HTA
*EPF Credits*
On Thursday 24th May we participated in a workshop on Health Technology Assessment (HTA) and Medical Technologies organized by MedTech...
Suggestions from EMA Digital Health topic group
As official members of the European Medicines Agency Patients’ and Consumers’ Working Party (PCWP), we are also very active in several of the agency’s...
We presented our Atopic Eczema Score of Emotional Consequences at the EAACI Congress
Every year we are active participants in the most important gathering from the allergologists community, the annual European Academy of Allergy and Clinical...
EU Health Commissioner invited us to present our views on HTA
On May 15th we were amongst the 8 patient, consumer and public health associations invited by the EU Commissioner on Health and Food Safety Vytenis Andriukaitis...
Campaign on travelling with allergies in the UK
This year the World Allergy Week took place from the 23d of April to the 29th of April, with many patient initiatives to raise awareness about allergies.
EFA...
First European Alpha-1 Awareness Day
On the 25th of April, EFA’s Roberta Savli took part in an EU Roundtable on Alpha-1 Antitrypsin Deficiency (a genetic disorder that can cause serious...
Online chat launched for allergy and asthma patients in Sweden
EFA's Member, the Asthma and Allergy Association of Sweden, has a web service called AllergiSmart, targeting people who have or are close to someone with...
The Swiss Pulmonary League launches 11 learning video clips for children with asthma in German, French and Italian
EFA Member, the Swiss Pulmonary League, has launched eleven learning video clips to help children with asthma manage better their condition. It complements...
Patients are driving the future of Severe Asthma research through ERS SHARP
SHARP is a Clinical Research Collaboration promoted by the European Respiratory Society. It stands for Severe Heterogeneous Asthma Research Collaboration,...
We presented the preliminary results of the biggest-ever atopic eczema survey for patients in Utrecht
Atopic Eczema is a very common inflammatory skin disease for which the predominant symptom is ITCHING. It is often underestimated but the signs and symptoms...
ERS severe asthma satellite
EFA’s president Mikaela Odemyr (Stockholm) and Susanna Palkonen (Brussels) took part in the ERS first ever Satellite symposium, dedicated to where we...
Our vision for the EU is healthier
Last 19th of April, EFA together with other 14 organisations published a joint statement on the future of health in the EU, ahead of the Employment, Social...
The Manifesto on Influenza Vaccination at the core of the vaccination week
Last 24th of April, EFA, together with the six other organisations, launched the European Union Manifesto on Influenza Vaccination. The Manifesto, which...
Europe aims to have a 1 million genomics database by 2022
Health sometimes is not only linked to health ministries but to trade. Last 10th April, the European Commission Single Market directorate, celebrated the...
EFA leaders meeting on personalised medicine, data protection and sharing, real world evidence
The next morning day, Tuesday 17th, we welcomed six guest speakers who are the top experts on their specialty in a session that explored the future of...