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EFA statement on value and pricing of innovative medicines

05 July 2016
EU
- Inequalities, - Healthcare, - Medicines
EFA shares the European Patients’ Forum (EPF) view that health is a fundamental right for everyone and therefore medicines, which allow for this right...

Treat the person, not the disease – Outcomes of the Personalised Medicine Conference

05 July 2016
EU
- Healthcare, - Medicines
Personalised medicine is seen as part of a wider shift from disease-centred to person-centred healthcare, from one-size-fits-all, to individualized treatment...

EFA calls for more and better public funding for patients groups

05 July 2016
EU
- Inequalities, - Healthcare
On the 30th of June, the Committee on Budget of the European Parliament voted an own-initiative report on public funding for non-profit organisations....

How to invest on health to improve patient access to care?

05 July 2016
EU
- Inequalities, - Healthcare
With 18 million patients declaring unmet needs on healthcare access (3.6% of the EU population), the European Commission Expert Panel on Effective Ways...

European Commission warns about health impact of e-cigarettes

05 July 2016
EU
- Tobacco & Smoking
Tobacco remains the most significant cause of premature death in the EU, responsible for almost 700,000 deaths every year. The EU Tobacco Products Directive...

European Parliament fights illicit trade of tobacco products

05 July 2016
EU
Asthma , COPD, Allergy
- Tobacco & Smoking
In the EU, tobacco continues to be the most significant cause of premature deaths responsible for nearly 700,000 deaths every year. One week after the...

New air quality legislation approved in Europe

05 July 2016
EU
Asthma , COPD, Allergy, Food Allergy, Other Diseases
- Air Quality
A deal on the National Emissions Ceilings (NEC) Directive has been reached under the Dutch Presidency of the European Union between the Parliament, the...

Take part in the Commission public consultations for patient-friendly clinical trials

05 July 2016
EU
Asthma , COPD, Allergy, Food Allergy, Other Diseases
- Medicines
In the month of June, the European Commission has launched four new public consultations on clinical trials. The consultations are on risk proportionate...

eHealth Week: technology for a better life

05 July 2016
EU
- Digital Health
The Dutch Ministry of Health together with the European Commission and HIMSS Europe organised from the 8th-10th of June the eHealth Week 2016 and EFA’s...

More investment for prevention – Conclusions of European Health Parliament

05 July 2016
EU
- Inequalities, - Healthcare, - Digital Health, - Medicines
On the 29th June, we participated in the European Health Parliament (EHP) closing session to bring the perspective of allergy, asthma and COPD patients. The...

Welcome to Slovakia, new EU Presidency!

05 July 2016
EU
On the 1st of July, Slovakia took over The Netherlands in the rotatory Presidency of the Council of the European Union. For six months, the country will...

How are asthma patients involved in science? Dominique’s testimony

05 July 2016
EU
Asthma
- Digital Health
“Our dream is to have a system that better supports us." Dominique Hamerlijnck, an asthma patient from the Netherlands, volunteer at EFA Member Longfonds,...

EFA Capacity building 2016

05 July 2016
Europe
- Inequalities, - Healthcare
For the third consecutive year, the EFA Capacity Building Project is about to start with the aim of leveraging members’ capacity to be involved in our...

Building up an association for Georgian patients

05 July 2016
Georgia
Asthma , COPD, Allergy, Food Allergy, Other Diseases
On the 31st of May EFA met with Dr Maia Rukhadze from Georgia, who is a leading allergologist working in Tbilisi. Dr Rukhadze, a patient herself, is confronted...

Indoor paint gets Danish blue wreath for the first time

05 July 2016
Denmark
Allergy
- Chemicals
For many years, EFA Member Asthma and Allergy Denmark has analysed indoor paint products to see if they met the standards of their blue wreath, a seal...

Norway closer to adopt plain tobacco packaging

05 July 2016
Norway
Asthma , COPD, Allergy, Other Diseases
- Tobacco & Smoking
Thanks to public calls from patient organisations like EFA Member the Norwegian Asthma and Allergy Foundation (NAAF), the Norweigian Minister of Health...

Increasing tobacco awareness among teenagers in Portugal

05 July 2016
Portugal
COPD
- Tobacco & Smoking
EFA Portuguese member RESPIRA has run awareness campaigns in Portuguese schools to inform about tobacco. The sessions were led by ex-smokers that gave...

Map and improve patient education in Europe – Participate in EFA’s survey

05 July 2016
Europe
Asthma , COPD, Allergy, Food Allergy
As part of our work to improve timely and equal access to quality care for allergy, asthma and COPD patients in Europe, specifically self-management, EFA...

EFA brings the patients’ perspective to the Medicines for Europe event

05 July 2016
Europe
- Medicines
On the 9th of June, EFA Senior EU Policy Adviser and Deputy Director Roberta Savli took part in a panel discussion on so-called value-added medicines organised...

Comic on COPD diagnosis and treatement

13 June 2016
France
COPD
- Tobacco & Smoking, - Healthcare
Material: A comic explaining how is COPD diagnosed and treated Original name: La BPCO, Broncho Pneumopathie Chronique Obstructive Author: French...