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In light of the Rare Disease Day in February, the European Commission has launched a new online knowledge-sharing platform to support better diagnosis and treatment for more than 30 million Europeans living with a rare disease.

Currently, information on patients with specific conditions is not consistently collected across Europe and there are no shared standards to analyse the information that is available on rare diseases. The new European Platform on Rare Diseases Registration will bring this data together supporting research to enhance diagnosis and treatment outcomes - helping to improve the lives of patients and their families.