Personalised Medicine alliance discusses HTA at Parliament
On September 26, the European Alliance for Personalised Medicine (EAPM) organised a Roundtable in the European Parliament to discuss how to coordinate...
The involvement of patients in HTA becomes secondary for the European Parliament
On October 3, the European Parliament plenary adopted in the first reading the file on the proposal for a regulation of the European Parliament and of...
European Atopic Eczema Day
Last September 14th the atopic eczema patient community belonging to EFA’s Members marked the first ever European Atopic Eczema Awareness Day to inform...
Horizon Europe must deliver on citizens’ priorities: the case of allergy and asthma
The European Parliament Interest Group on Allergy and Asthma held a policy meeting on October 9 to overcome the barriers to research in NCDs in Europe....
EFA becomes official NGO to WHO Europe
On September 20 the WHO Regional Committee for Europe adopted a decision in plenary to accredit 19 not for profit organisations, including EFA, into ‘regional...
Do you support atopic eczema patients? Put the filter on
To mark #AtopicEczemaDay we have launched a social media filter to raise awareness about a disease that goes beyond the skin. We want to catch people’s...
New President for the food allergy patients in France
AFPRAL, the French Association for the Prevention of Allergies, has a new elected president, Pascale Couratier, replacing exiting President Véronique...
We are members of the Digital Health group at EPF
The European Patients Forum (EPF) has recently launched a working group to guide and support its strategy on digital health with the aim of positioning...
EFA launches Capacity Building webinars
For the 1st time this year we will be connecting to transfer knowledge and grow our capacities via online seminars (called webinars!). There will be 6...
EU-UK patient group meets the European Commission to discuss Brexit
In July, our Director Susanna Palkonen chaired a meeting on behalf of the European Patients’ Forum and coordinated by the Association of Medical Research...
HTA proposal approved by the European Parliament health committee leaves out some patients expectations
The proposal for a regulation on Health Technology Assessment (HTA) has been high on the agenda of the European Parliament during the last months. The...
Is the role of patients neglected in the prevention of Chronic Respiratory Disease? Our presentation at GARD
EFA Board Member, Hubert Nettel, had the honour to present in the opening of the 12th Global Alliance against Chronic Respiratory Diseases (GARD) General...
The 7th Environment Action Programme evaluated by allergy and respiratory patients
The European Commission launched a public consultation to evaluate the 7th Environment Action Programme (7th EAP), which is the strategic document that...
Should the EU revise the EU Ambient Air Quality Directives? Patients say YES!
The European Commission launched in May-July a process to gather information on the impact and added value of the EU Ambient Air Quality Directives from...
SAVE THE DATE! The European Parliament Interest Group’s event on the barriers to research in chronic NCDs in Europe
Next 9th October 2018, the European Parliament Interest Group on Allergy and Asthma, is organising an event entitled “How to overcome the barriers to...
EUROPEAN REPORT: Itching for life - Quality of Life and costs for people with severe atopic eczema in Europe
EFA's 2018 European report Itching for Life: Quality of Life and costs for people living with severe atopic eczema in Europe uncovers the reality...
PRESS RELEASE: 1st European Atopic Eczema Awareness Day
On the 1st European Atopic Eczema Awareness Day
New patients report uncovers the reality of severe atopic eczema in Europe
[Press release avaiable in...
AEPNAA Summer Camp 2018 for children with food and latex allergies
From June the 23rd to July the 1st , AEPNAA organised their annual Summer Camp, aiming towards children with food and latex allergies....
IMI and its 10 years of medical innovation, the example of U-BIOPRED
On June 27th we were 400 participants to celebrate an outstanding achievement on medical research. In the last ten years, the Innovative Medicine Initiative...
Myaircoach in MedTech week
For the 4th time, national associations and companies active on medical devices organised from 4-8 June activities across Europe to promote the value of...