- Patients are driving the future of Severe Asthma research through ERS SHARP
- SHARP is a Clinical Research Collaboration promoted by the European Respiratory Society. It stands for Severe Heterogeneous Asthma Research Collaboration, Patient centred and it aims to facilitate stu ...
- First European Alpha-1 Awareness Day
- On the 25th of April, EFA’s Roberta Savli took part in an EU Roundtable on Alpha-1 Antitrypsin Deficiency (a genetic disorder that can cause serious lung or liver disease, including COPD), marking the ...
- PRESS RELEASE: World Asthma Day 2018
- Life is possible for patients with severe asthma Provided that they have accurate diagnosis Brussels, 1st May 2018 – WORLD ASTHMA DAY – Today European asthma patients are joining voices under the ...
- Some patients with asthma are affected… SEVERELY!
- In March we travelled to the UK and kicked-off our new project “Severely, Asthma!”, a video series that explores the different issues impacting the life of severe asthma patients. Severe asthma is sub ...
- EMA update on medicines for COPD and eczema
- The European Medicines Agency Committee for Medical Products for Human Use (CHMP), responsible for human medicines, has granted a positive opinion on the medical products Riarify and Trydoni ...
- Sign the EU Manifesto on Influenza Vaccination
- On March 12, EFA launched a 10-point Manifesto calling the EU for more action to increase seasonal influenza vaccination coverage rates in Europe. Influenza is annually responsible for 650 thousand de ...
- Take the survey: does your lung disease affect family planning and pregnancy?
- The European Respiratory Society (ERS) and the Thoracic Society of Australia and New Zealand (TSANZ) are looking for information to understand how people with a lung condition are currently cared for ...
- EFA launches Atopic Eczema working group
- The needs and lives of patients living with atopic eczema are very specific sometimes, that is why at EFA we are happy to announce the launch of a working group on Atopic Eczema. The working gro ...
- WHO encourages European action on air pollution to protect health
- On the 13th of February, EFA Director of Policy and Strategy Roberta Savli participated in a briefing organised by our partner Health and Environment Alliance (HEAL) together with the World Health Org ...
- Good Indoor Air Quality is possible if industry believes on it
- EFA Director of Policy and Strategy Roberta Savli attended the VSK exhibition in Utrecht on the 7th of February, an event that brings together experts from the heating, plumbing, climate control and r ...
- Patients’ safety and public health post-Brexit
- On the 21st of February, EFA Director of Policy and Strategy Roberta Savli participated in an event organised by a broad coalition of public health actors on the need to prioritise patients’ safety ...
- New guidelines to establish diets in children with food allergy
- Food allergy is becoming increasingly common in infants and young children. Managing this disease can be a great challenge due to the patients’ young age. Researchers have been looking at how to devel ...
- Severely, Asthma! project
- Approximately 30 million people suffer from asthma in Europe, and 5-10% of them have severe asthma. Severe asthma is a type of asthma where, despite people taking their regular preventer medication on ...
- Welcome to an exciting 2018 for @EFA_Patients
- I hope you, all our members, supporters, readers and allergy, asthma and COPD patients have had a good, inspiring start of the year. At EFA, we recap on our actions from the previous year to assess ...
- Our own homes are making us sick: Energy efficiency is part of the cure
- Editorial: EFA President, Mikaela Odemyr. Published on Euractiv. Given that we spend 90% of our time indoors, the quality of our homes, schools and workplaces is a critical public health issue. Grow ...
- On World COPD Day EFA COPDMoves into political spotlight
- As representative of patients living with chronic obstructive pulmonary disease (COPD), we marked the World COPD Day on the November 15th with several publications, including a political video within ...
- Meet&Greet the EU training - Empowering EFA Members on HTA
- In November we welcomed our Member representatives to a thematic Meet&Greet the EU training that this year focused on patients’ involvement on Health Technology Assessment. The meeting gathered 10 ...
- Looking for better outcomes for upper airways patients - European Rhinology Health Forum
- EFA represented patients at the European Rhinology Research Forum 2017 on 9-10 November 2017, organized by the European Forum for Research and Education in Allergy and Airway diseases (EUFOREA) and&nb ...
- How to assess the risk of unintended allergens in food?
- Our member Deutscher Allergie- und Asthmabund e.V. (DAAB) represented EFA at the 14th November roundtable with NGOs organized by the European Food Security Agency (EFSA) to exchange best practices and ...
- What’s the most relevant research on asthma and COPD this year? ERS respiratory update
- On the 17th November EFA’s Isabel Proaño attended online the respiratory update organised by the European Respiratory Society in Stockholm, Sweden. The programme was of extreme interest for EFA’s work ...